In this episode, Jacquelyn Shapiro shares her experiences as a daughter of FTD in a very vulnerable way. She and Stephanie compare their experiences having mothers with this very difficult diagnosis and the daily rollercoaster it can entail. Jacquelyn also shares her knowledge and details surrounding the genetic components and advancements behind the disease.
About Jacquelyn: Jackie was born and raised in New York to Russian-Jewish immigrant parents. In 2020, her mom was diagnosed with bvFTD at the age of 56 when Jackie was only 30 years old. Her family later learned that her mom is a carrier of GRN (FTD gene), causing FTD. Though the disease is genetic, her family had no known history of dementia. Today, Jackie has become an advocate for genetic testing and support for caregivers.
Find Jacquelyn on instagram: @ftdalovestory
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